Anna Middleton

Anna Middleton is a social scientist and genetic counsellor. She is Head of the Society and Ethics Research group, part of Connecting Science, based on the Wellcome Genome Campus. She is also a Professor/Affiliate Lecturer at the Faculty of Education at the University of Cambridge.

Anna Middleton
Anna Middleton in 2019
Alma materUniversity of Leeds (PhD)
Scientific career
InstitutionsNational Health Service
Wellcome Sanger Institute
Connecting Science
University of Cambridge
ThesisAttitudes of deaf adults and hearing parents of deaf children towards issues surrounding genetic testing for deafness (2000)
Websitesocietyandethicsresearch.wellcomegenomecampus.org/staff/anna-middleton

Education

Middleton completed her undergraduate studies in genetics at Newcastle University, before undertaking a MSc in Genetic Counselling at the University of Manchester.[1] She completed a PhD at the School of Psychology and Research School of Medicine at the University of Leeds in 2000.[1] Her PhD is in genetics and psychology, and explored the attitudes of Deaf adults and hearing parents of deaf children towards issues surrounding genetic testing for deafness. Anna was the first person to publish empirical data on the attitudes of Deaf parents towards using pre-natal testing for deafness, with the preference for having deaf children.[2][3]

Middleton obtained her registration as a Genetic Counsellor with the Genetic Counselling Registration Board UK and Republic of Ireland in 2003.[4]

Career and research

Middleton joined the Sanger Institute in 2010, contributing ethics input into the Deciphering Developmental Disorders project by gathering public perspectives on the return of results from genome sequencing research.[5] In 2015 Anna founded the Society and Ethics Research group, which is part of Connecting Science. Anna and the group are interested in a range of issues relating to genomics and its relationship with society. They are undertaking research on public attitudes to genomic data sharing;[6] how to communicate genomic concepts to patients;[7] and the duty of care and the duty of confidentiality in the context of medically relevant genetic information.[8][9]

Anna acted as an advisor on genomics and ethics to the 2019 Topol Review, an independent report commissioned by the Secretary of State for Health and Social Care on preparing the NHS healthcare workforce for the digital future, including genomics, AI and robotics.

She was Chair of the Oversight Group for Genomics England's 2019 report on 'A Public Dialogue on Genomic Medicine'.[10]

Honours and awards

Middleton was the Chair of the Association of Genetic Nurses and Counsellors (2018-2019) and Vice-Chair prior to this, having first been elected to the Committee in 2014. She was also Vice-Chair of the Genetic Counselling Registration Board (2007-2009) and an elected member of the Board prior to this (2004-2010).

Media work

Anna has undertaken extensive print and broadcast media work, including appearance on Channel 4 news, BBC Radio 4, and in the Guardian.[11][12][13]

References
  1. "Anna Middleton Education".
  2. Middleton A, Hewison J, Mueller RF (1998) Attitudes of deaf adults toward genetic testing for hereditary deafness. Am J Hum Genet 63 (4):1175-80. doi:10.1086/302060 PMID 9758618
  3. Society and Ethics Research group website
  4. "Genetic Counsellor Registration Board".
  5. Deciphering Developmental Disorders project website
  6. Your DNA Your Say
  7. Music of Life project
  8. Middleton A, Milne R, Robarts L, Roberts J, Patch C (2019) Should doctors have a legal duty to warn relatives of their genetic risks? Lancet 394 (10215):2133-2135. doi:10.1016/S0140-6736(19)32941-1 PMID 31784025
  9. ABC vs St George's NHS Trust project
  10. https://www.genomicsengland.co.uk/public-dialogue-report-published/
  11. Channel 4 News
  12. BBC Radio 4 Inside Health
  13. Guardian article
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