Crohn's & Colitis Foundation

The Crohn's and Colitis Foundation is a volunteer-driven non-profit organization dedicated to finding cures for Crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these digestive diseases. Founded by Shelby Modell and Irwin M. Rosenthal,[2] and formerly known as National Foundation for Ileitis and Colitis and Crohn's and Colitis Foundation of America,[5] it was incorporated on December 17, 1965.[1] CCF has more than 50,000 members, served by the national headquarters, as well as over 40 chapters nationwide.[6]

Crohn's and Colitis Foundation
AbbreviationThe Foundation
FoundedDecember 17, 1965 (1965-12-17)[1]
FoundersShelby Modell and Irwin M. Rosenthal[2]
13-6193105[3]
Legal status501(c)(3) nonprofit organization
HeadquartersNew York City[3]
Area served
United States
MethodsFunds research of Crohn's disease and ulcerative colitis, and provides information about Crohn's disease and ulcerative colitis[3]
Members
more than 50,000
Vance Gibbs[2]
Michael Osso[4]
Revenue (2013)
$54,419,988[3]
Expenses (2013)$53,307,072[3]
Employees (2013)
379[3]
Volunteers (2013)
4,300[3]
Websitewww.crohnscolitisfoundation.org
Formerly called
National Foundation for Ileitis and Colitis,[5] Crohn's and Colitis Foundation of America

Research, educational workshops and symposia, together with the Crohn's & Colitis Foundation scientific journal, Inflammatory Bowel Diseases, enable medical professionals to keep pace with this rapidly growing field. The National Institutes of Health has commended the Foundation for "uniting the research community and strengthening IBD research".[7] The Foundation ranks third among leading health non-profits in the percentage of expense devoted to mission-critical programs, with at least 80 cents of every dollar the Foundation spends going toward medical research, professional education, and patient support.[8]

Research

Four decades ago, the Crohn's & Colitis Foundation created the field of Crohn's disease and ulcerative colitis research. The Foundation funds studies[9] at medical institutions, nurtures investigators at the early stages of their careers, and finances underdeveloped areas of research to find the causes of and cures for Crohn’s and colitis.[7] The Foundation has provided more than $150 million for Crohn's and colitis research to date.[10]

Patient and Professional Education and Support

The Crohn's & Colitis Foundation offers literature and patient support services nationally as well as through its forty regional chapters. The Foundation provides information and education for the estimated 3.1 million inflammatory bowel disease (IBD) patients and their families through a variety of periodicals (Take Charge,[11] Under the Microscope[12] ), books, awareness campaigns, local chapter events, Webcasts, and through its web site.[3] Due to its extensive public awareness and outreach efforts, the Foundation reaches at least one out of every 18 patients, compared to the Arthritis Foundation, with one out of every 85, or the Juvenile Diabetes Research Foundation, with one out of every 435.[13]

Advocacy

Advocacy is a major component of the Crohn's & Colitis Foundation's mission. Its advocates are not only patients, but family members, friends, caregivers, and doctors who want to make their voices heard and see a future free from Crohn's and colitis. Foundation advocates call for increased Federal funding for Crohn's and colitis research and awareness programs designed to improve the lives of patients and improved access to care. The Foundation encourages its members, volunteers, and friends to become actively involved in advancing its public policy goals.[14]

Awareness Week

The Crohn's & Colitis Foundation designated the week of December 1–7 as Crohn's and Colitis Awareness Week in order to encourage all Americans to join in the effort to find cures for these diseases, help raise awareness and support research.

Fundraising

The Crohn's & Colitis Foundation primarily relies on the support of members and donors to continue its work. The Foundation raises critical dollars through its local and nationwide special events, spearheaded by its national Team Challenge[15] and Take Steps[16] programs.

Team Challenge is the Foundation's endurance training and fundraising program, which prepares participants to run or walk a half marathon, take part in a cycling event, or experience a sprint triathlon while raising money for a cure.[15]

Take Steps, the Foundation's largest fundraising event, mobilizes participants in over 150 local communities across the nation to come together and walk for Crohn’s and colitis research.[16][17]

The Foundation received $3,042,350 of grants from the United States Department of Health and Human Services between 2008 and 2015.[18]

Great Comebacks Awards

Crohn's and Colitis Foundation of America established the Great Comebacks Awards in 1984 in order to recognize individuals who have triumphed over inflammatory bowel disease.[5] In 1991, the award was given to Dr. P. Kent Cullen, a colon surgeon who has ulcerative colitis and has undergone multiple ostomy surgeries.[5]

Mission

The mission of the Crohn's & Colitis Foundation is "to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases."[19]

See also

References
  1. "Crohn's & Colitis Foundation of America, Inc." Division of Corporations. New York State Department of State. Accessed February 2, 2016.
  2. "Board of Trustees". Crohn's and Colitis Foundation of America. Accessed on February 2, 2016.
  4. "Staff". Crohn's and Colitis Foundation of America. Accessed on February 2, 2016.
  5. Anderson, Susan Heller. "Chronicle". The New York Times. June 5, 1991. p. B4.
  6. "About Us - Crohn's & Colitis Foundation Information - Crohn's & Colitis Foundation". www.ccfa.org.
  7. "About Us - Crohn's & Colitis Foundation Information - Crohn's & Colitis Foundation". www.ccfa.org.
  8. "Archived copy". Archived from the original on 2011-05-16. Retrieved 2012-01-16.CS1 maint: archived copy as title (link)
  9. Benson, Paul. "Dr. Marshall S. Bedine On Crohn's Disease". Baltimore Jewish Times. April 8, 1994. p. 16.
  10. "Our Mission and Core Values - Crohn's & Colitis Foundation". www.ccfa.org.
  11. "Archived copy". Archived from the original on 2010-12-14. Retrieved 2012-01-16.CS1 maint: archived copy as title (link)
  12. "Archived copy". Archived from the original on 2010-12-14. Retrieved 2012-01-16.CS1 maint: archived copy as title (link)
  13. "Archived copy". Archived from the original on 2010-02-08. Retrieved 2012-01-16.CS1 maint: archived copy as title (link)
  14. "Archived copy". Archived from the original on 2012-01-17. Retrieved 2012-01-16.CS1 maint: archived copy as title (link)
  15. "Team Challenge - Crohn's & Colitis Foundation". www.ccteamchallenge.org.
  16. "Crohn's & Colitis Foundation". cctakesteps.org.
  17. http://online.ccfa.org/site/PageServer?pagename=TS_homepage
  18. "Crohn's and Colitis Foundation of America". USAspending.gov. Bureau of Fiscal Services. United States Department of the Treasury. Accessed on February 2, 2016.
  19. "About Us | Crohn's & Colitis Foundation Information | Crohn's & Colitis Foundation". www.crohnscolitisfoundation.org. Retrieved 2017-05-10.
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