Health web science

Health Web Science (HWS) is a sub-discipline of Web Science that examines the interplay between health sciences, health and well-being, and the World Wide Web. It assumes that each domain influences the others. HWS thus complements and overlaps with Medicine 2.0 (medicine enabled by emerging technologies).[1] Research has uncovered emergent properties that arise as individuals interact with each other, with healthcare providers and with the Web itself.

History

HWS began at the Web Science Curriculum meeting in the summer of 2010 at the University of Southampton where approximately forty scholars came together to discuss the subject. That was followed by a foundational Workshop in Koblenz 2011 under the aegis of ACM.[2][3]

The dialogue to more precisely define HWS as a sub-discipline of Web Science began among Web-oriented investigators at the 2012 Medicine 2.0 Conference[4][5] and was formalized in 2013.[6] This nascent discipline of Health Web Science is further described and developed in the monograph "Health Web Science".[7]

A call to action at the ACM Web Science workshop[8] asked the community to consider how to accelerate the discipline. In particular, beyond the available knowledge-gathering technologies (e.g. blogs, social-medicine portals, experience mining, graph theory, network analysis, and game theory), what additional is required to deal with the Health Web's emergent properties? For example, what is needed to curate, interrogate, and visualize the combination of both 'Big Data' – arising from the increasingly pervasive sources and sensors including "the Internet of things, the quantified self, smart cities, and smart homes – and smaller-scale data arising from individual patient conversations, self-reporting, and self-exploration? How are small-scale innovations safely and efficiently scaled up to the size of the Web and scaled out to millions of patients?[9]

One research group argued for technologies that enable predictive, personalized, preventive, and participatory (P4) medicine.[10] Other stated needs include an "Expert Patient" capable of making sense of online medical information in a personal context, tools to cope with information overload through e.g., text mining and semantic technologies, in particular through algorithm-aided decision making.

Health web observatory

At the Medicine 2.0 European meeting in 2014, the case was made for the need to design bespoke health web observatories. The Web Science Trust[11] introduced the concept of a Web observatory[12] as an integrated collection of data sources and analysis tools that enables observation and experimentation for Web study,[13] and positioned it to bridge the gap between big data analytics and the data.[14] A Health Web observatory, therefore, gathers and links health data on the Web (big data and broad data) in order to answer questions. This facilitates the 'Healthcare Singularity'[15] where bench-to-bedside and experiment-to-practice becomes instantaneous. HWS combines the axiom of 'first do no harm' (Hippocrates) with 'do no evil' (Google), paying specific attention to technology and safeguards.

References
  1. McHattie LS, Cumming G, French T. Transforming Patient Experience: Health Web Science Meets Medicine 2.0 Med 2.0 2014;3(1):e2 URL:http://www.medicine20.com/2014/1/e2 DOI: 10.2196/med20.3128.
  2. Brooks, Elizabeth H.; Cumming, Grant P.; Luciano, Joanne S. (2011-01-01). Health Web Science: Application of Web Science to the Area of Health Education and Health Care. Proceedings of the Second International Workshop on Web Science and Information Exchange in the Medical Web. MedEx '11. New York, NY, USA: ACM. pp. 11–14. doi:10.1145/2064741.2064746. ISBN 9781450309509.
  3. "ACM".
  4. "Medicine 2.0'12 (Boston, USA)". www.medicine20congress.com. Retrieved 2016-03-08.
  5. Luciano, Joanne S.; Cumming, Grant P.; Wilkinson, Mark D.; Kahana, Eva (2013-01-01). "The emergent discipline of health web science". Journal of Medical Internet Research. 15 (8): e166. doi:10.2196/jmir.2499. ISSN 1438-8871. PMC 3758025. PMID 23968998.
  6. Luciano, Joanne S.; Cumming, Grant P.; Wilkinson, Mark D.; Kahana, Eva (2013-01-01). "The emergent discipline of health web science". Journal of Medical Internet Research. 15 (8): e166. doi:10.2196/jmir.2499. ISSN 1438-8871. PMC 3758025. PMID 23968998.
  7. Luciano, Joanne S. (2013). "Health Web Science". Foundations and Trends in Web Science. 4 (4): 269–419. doi:10.1561/1800000019.
  8. "WK9 - Life Web Science Workshop - ACM Web Science 2013". www.websci13.org. Retrieved 2016-03-08.
  9. Gillam et al. (2009) The healthcare singularity and the age of semantic medicine. In The Fourth Paradigm Data-Intensive Scientific Discovery.Microsoft Research Washington.
  10. Hood, Leroy; Friend, Stephen H. (2011). "Predictive, personalized, preventive, participatory (P4) cancer medicine". Nature Reviews Clinical Oncology. 8 (3): 184–187. doi:10.1038/nrclinonc.2010.227. PMID 21364692.
  11. "Web Science Trust". Web Science Trust. Archived from the original on 2012-06-29. Retrieved 2016-03-08.
  12. "Web Observatory". Web Science Trust. Retrieved 2016-03-08.
  13. Hall, Wendy and Tiropanis, Thanassis (2012) Web Evolution and Web Science. Computer Networks, 56, (18), 3859-3865. Eprints:http://eprints.soton.ac.uk/343770/
  14. Tiropanis, T, Hall, W, Shadbolt N, De Roure, David Contractor N, Hendler J. The Web Science Observatory 2013.
  15. Gillam et al.(2009) The healthcare singularity and the age of semantic medicine. In The Fourth Paradigm Data-Intensive Scientific Discovery. Microsoft Research Washington.
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