North American Association of Central Cancer Registries

The North American Association of Central Cancer Registries, Inc. (NAACCR), established in 1987, is a collaborative umbrella organization for cancer registries, governmental agencies, professional associations, and private groups in North America interested in enhancing the quality and use of cancer registry data.[1][2][3][4] All central cancer registries in the United States and Canada are members.[1][2][3][4]

NAACCR
Founded1987
Location
Area served
United States and Canada
Websitenaaccr.org

Organizational mission

The North American Association of Central Cancer Registries, Inc. is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research, public health programs, and patient care to reduce the burden of cancer in North America.[1][2][3][4]

Leadership and committees

NAACCR is governed by a ten-member board of directors.[5] The NAACCR Executive Director is an ex-officio member of the board. NAACCR members participate in five steering committees, several special committees, and temporary ad hoc committees which help drive much of the association's work.[6] These include:

Steering committees:

  • Standardization and Registry Development Steering Committee
  • Research and Data Use Steering Committee
  • Communications Steering Committee
  • Professional Development Steering Committee
  • Strategic Alliances Steering Committee[7]

Sponsoring member organizations

NAACCR is sponsored by ten member organizations, which participate in quarterly Sponsoring Member Organization meetings and provide input on NAACCR's cancer surveillance activities:

Main activities

Cancer data standards

One of NAACCR's first goals was to achieve consensus on cancer registration standards among the many standard-setting organizations in the United States and Canada, in order to facilitate compilation and comparison of information across different registries. Today, nearly all registries in North America have adopted the NAACCR consensus standards. NAACCR updates these standards annually to meet the changing needs of the registry community.[1]

Cancer research

Every year, NAACCR issues a call for data from its registry members. These data are evaluated for accuracy and compiled into analytic files to produce CINA, an annual statistical monograph of cancer incidence in the United States and Canada; CINA+ Online, an online query system of cancer incidence data for the previous five years from selected member registries; and CINA Deluxe, a data file for NAACCR researchers to conduct cancer surveillance systems.[8] NAACCR also collaborates with other cancer organizations to produce the Annual Report to the Nation on the Status of Cancer.[9]

Education and training

In order to develop and maintain the skills and knowledge of cancer reporters in North America, NAACCR creates and releases training workshops, resource materials, and continuing education opportunities. These include online webinars, in-person workshops, scholarships and grants, and other resources.[10] Since its inception, NAACCR has also hosted an annual meeting, focusing on a different theme each year.[11]

References
  1. "NAACCR". About NAACCR. Retrieved 2010-06-16.
  2. "Technical Notes: Collaborating Partner: NAACCR". CDC. Retrieved 2010-06-16.
  3. "SEER Training Modules: NAACCR". SEER. Retrieved 2010-06-16.
  4. "Health Information Resource Database: NAACCR". NHIC. Retrieved 2010-06-16.
  5. "NAACCR Board". NAACCR. Retrieved 2010-06-16.
  6. "NAACCR Committees". NAACCR. Archived from the original on 2010-07-24. Retrieved 2010-06-16.
  7. "Archived copy". Archived from the original on 2015-04-21. Retrieved 2015-04-28.CS1 maint: archived copy as title (link)
  8. "Cancer Research Brochure" (PDF). NAACCR. Retrieved 2010-06-16.
  9. "Annual Report to the Nation on the Status of Cancer". NAACCR. Retrieved 2010-06-16.
  10. "NAACCR Education and Training". NAACCR. Retrieved 2010-06-16.
  11. "NAACCR Annual Conference". NAACCR. Retrieved 2010-06-16.
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