Electronic health records in England

In 2005 the National Health Service (NHS) in the United Kingdom began deployment of Electronic health record systems in NHS Trusts. The goal was to have all patients with a centralized electronic health record by 2010.[1] Lorenzo patient record systems were adopted in a number of NHS trusts While many hospitals acquired electronic patient records systems in this process, there was no national healthcare information exchange.[2] Ultimately, the program was dismantled after a cost to the UK taxpayer was over $24 Billion (£12 billion), and is considered one of the most expensive healthcare IT failures.[3]

In November 2013 NHS England launched a clinical digital maturity index to measure the digital maturity of NHS providers[4] but 40% of NHS managers surveyed by the Health Service Journal did not know their ranking, and the same proportion said improving their ranking was of low or very low priority.[5]

Electronic palliative care coordination systems have been developed by Marie Curie Cancer Care and the Royal College of General Practitioners which mean that terminally ill patients no longer have to explain their circumstances afresh to every new professional they meet and are less likely to be inappropriately taken to hospital.[6]

Personalised Health and Care 2020

The publication of Personalised Health and Care 2020 by the Department of Health elaborated a new attempt to integrate patient records.[7] Its stated ambition was that every citizen would be able securely to access their health records online by 2018 and make real time data available to paramedics, doctors and nurses.[8] A real time record across health and social care is seen as the key to the provision of integrated care.[9]

Hospital systems

Transferring hospital records to electronic systems has generally been much slower and more difficult than in primary care, apart from clinical imaging, which has been largely electronic for several years. In 2019 only 10% of NHS trusts claimed to be fully digitised. Plans for a paperless NHS by 2020 are clearly not going to be realised. The NHS Long Term Plan requires all hospitals to move to digital records by 2023, so clinicians can access and interact with patient records and care plans wherever they are. 62% of trusts have plans to digitise all their patient records.[10]

GP Systems

GP2GP is an NHS Connecting for Health project in the United Kingdom. It enables GPs to transfer a patient's electronic medical record to another practice when the patient moves onto the list.[11] In General Practice in the UK the medical record has been computerized for many years, in fact the UK is probably one of the world leaders in this field. There are very few General Practices in the UK which are not computerized. Unlike the USA GP's have not had to deal with billing and have been able to concentrate on clinical care. The GP record is separate from the national Care Record and contains far more data. Shaun O'Hanlon, EMIS's Chief Clinical Officer says that the legal framework around data sharing is the main problem in integrating patient data because the Data Protection Act 1998 puts responsibilities on GPs to protect the confidentiality of patient data, but at the same time they have a "duty to share" when it is in the best interests of the patient. He says the quickest, easiest route to large scale record sharing is to put patients in the driving seat using smartphone technology. He quotes a YouGov poll which found that 85% of the population wanted any medical professional directly responsible for their treatment to have secure electronic access to key data from their GP record, such as long term conditions, medication history or allergies.[12]

Clinical IT suppliers are moving towards greater interoperability, already achieved with the GP2GP project allowing different systems to exchange complete medical records between practices. There are projects allowing access between hospitals & GP practices. The main Primary Care systems are EMIS Health, SystmOne, iSOFT, and INPS Vision. The NHS in Scotland widely used GPASS until 2012. From April 2014 practices are contractually required to promote and offer patients the opportunity to book appointments online, order repeat prescriptions online and provide online patient record access.[13]

The assistant coroner for inner north London has twice written to Jeremy Hunt warning that “future deaths could occur [if] further action is not taken to facilitate secondary care access to GP records”.[14]

Leeds was the first city to implement the NHS Digital programme GP Connect. This makes patient records available across care settings, including social care, general practice, community, mental health and hospitals.[15]

Patient access

It has been possible for patients to access their own medical records online for some time. By 2013, the debates had moved onto discussing the impact of patient access on patient care.[16]

See also

References

  1. "NHS Connecting for Health:Delivering the National Programme for IT". Archived from the original on 10 August 2006. Retrieved 4 August 2006.
  2. Say M (26 September 2011). "Cabinet Office review pleads stay of execution for NHS IT". London: Guardian. Retrieved 29 September 2011.
  3. Evenstad, Lis (3 November 2015). "NHS trusts to self-assess their digital maturity". Computer Weekly. Retrieved 14 November 2015.
  4. Read, Claire (13 October 2015). "Survey: Funding pressures are holding up the paperless NHS". Health Service Journal. Retrieved 14 November 2015.
  5. Nightingale P (21 November 2014). "Coordinated systems help ensure people die where they choose". Health Service Jpurnal. Retrieved 14 December 2014.
  6. National Information Board; Department of Health (13 November 2014). "Personalised Health and Care 2020". Gov.UK. Government Digital Service.
  7. Heywood J (12 December 2014). "How developments in technology and data in the NHS are improving outcomes for patients". Blog Civil Service. Gov.uk. Retrieved 14 December 2014.
  8. Read C (21 November 2014). "Roundtable: A new charter for integrated care". Health Service Journal. London: EMAP Publishing. Retrieved 14 December 2014.
  9. "Majority of NHS trusts yet to fully embrace digital patient records". Building Better Healthcare. 29 May 2019. Retrieved 8 July 2019.
  10. "GP2GP". NHS Connecting for Health. Archived from the original on 9 April 2010.
  11. O'Hanlon S (24 November 2014). "Data sharing: step out of the technological dark ages". Health Service Journal. Wilmington plc. Retrieved 18 December 2014.
  12. "Will your IT system support the requirements of the new contract?". Pulse. Cogora Limited. 14 April 2014. Retrieved 17 April 2014.
  13. Thomas R (23 August 2017). "Health secretary warned again over hospital access to GP records". Health Service Journal. Wilmington plc. Retrieved 6 October 2017.
  14. "First city adopts new system for sharing GP patient records across services". Pulse. 15 October 2018. Retrieved 17 October 2018.
  15. Davis Giardina T, Menon S, Parrish DE, Sittig DF, Singh H (2013). "Patient access to medical records and healthcare outcomes: a systematic review". Journal of the American Medical Informatics Association. 21 (4): 737–41. doi:10.1136/amiajnl-2013-002239. PMC 4078277. PMID 24154835.
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