National Women's Health Network

The National Women's Health Network (NWHN) is a non-profit women's health advocacy organization located in Washington, D.C.. It was founded in 1975 by Barbara Seaman, Alice Wolfson, Belita Cowan, Mary Howell, M.D., and Phyllis Chesler, Ph.D. The stated mission of the organization is to give women a greater voice within the healthcare system. The NWHN researches and lobbies federal agencies on such issues as AIDS, reproductive rights, breast cancer, older women's health, and new contraceptive technologies. The Women's Health Voice, the NWHN's health information program, provides independent research on a variety of women's health topics.[1]

National Women's Health Network
AbbreviationNWHN
Formation1975
FounderBarbara Seaman
Alice Wolfson
Belita Cowan
Mary Howell
Phyllis Chesler
Founded atWashington, D.C.
Typenon-profit women's health advocacy organization
HeadquartersWashington, D.C.
Websitewww.nwhn.org

History

The NWHN was founded in late 1975 as the National Women's Health Lobby by Barbara Seaman, Alice Wolfson, Belita Cowan, Mary Howell, M.D., and Phyllis Chesler, Ph.D. It was created to be both a lobbying organization and to monitor federal legislation and research relating to women's health, Food and Drug Administration (FDA) hearings, and Department of Health, Education and Welfare regulations.[2] By December of 1975, the organization was renamed the National Women's Health Network after the group realized that regulatory groups, as opposed to legislative bodies, had more influence on women's health.[2][3]

The first action of the NWHN was a demonstration held outside of the FDA building in Rockville, Maryland on December 15th and 16th of that year, in order protest against the FDA's approval and lack of oversight of synthetic estrogens. The protest was planned for those days because two scientific studies done on the risks of estrogenic drugs were about to be published in the The New England Journal of Medicine and inside the building, the FDA was going to be holding hearings on the risks of DES (diethylstilbestrol)--formerly prescribed to pregnant women in order to prevent miscarriages and other complications, by 1971 DES had been found to cause a rare cancer, clear-cell adenocarcinoma of the vagina, in women and girls exposed to the drug in utero--and whether to mandate patient packaging inserts for estrogen replacement therapy drugs prescribed to menopausal women.[4] On the outside of the building, the demonstrators held a funeral service to memorialize women who had died after taking drugs containing synthetic estrogens. Speakers discussed the risks of taking medications like DES, the morning-after pill, estrogen replacement therapy for menopausal women, as well as combined oral contraceptive pills.[5] Speakers included Jim Luggen, a widower whose late wife had died of a pulmonary embolism caused by the oral birth control she was taking; Mary Daly, a radical feminist theologian and philosopher; a DES daughter Sherry Leibowitz; and Barbara Seaman.[6] The protest had approximately 100 participants and Dr. Richard Crout, the head of FDA Bureau of Drugs at the time, attended.[5]

Participants carried signs reading "Feed Estrogen to the Rats at the FDA" and "Women's Health, Not Drug Company Wealth."[7] After the protests and the Nelson Pill Hearings, Patient Packaging Inserts (PPIs) listing side effects were instated for oral contraceptives—the first PPIs in U.S. history.[8]

With the help of a grant from the Ms. Foundation, the NWMN also became a clearinghouse for women's health information, and continues to provide women with objective health information from a feminist viewpoint.[9][2]

The Present
  • The NWHN petitioned the FDA in August, 2006 to cease sales of estrogen testosterone combination treatments.[10]
  • The NWHN Board of Directors includes Susan F. Wood, who served as Assistant Commissioner for Women's Health and Director of the Food and Drug Administration (FDA) Office of Women's Health (OWH) from November 2000 through August 2005, when she resigned on principle due to the continued delay of approval of the emergency contraceptive, Plan B.[11]
  • In 2013, the NWHN joined the All*Above All campaign to lobby for Congress to repeal federal and state restrictions on abortion care coverage.[12]

Values
  • There is worth in women's personal accounts of their experiences, and health policy should echo women's diverse experiences.
  • The normal changes that women experience over their lifetimes should not be over treated.
  • Every woman should have access to quality health care.
  • Information given to women to direct their health decisions should be motivated by evidence rather than profit.
  • Government has the responsibility to provide for the health and welfare of all people.
  • Scientific analysis that takes into account systems of oppression and power is valuable to all.

Raising Women's Voices

The National Women's Health Network helped found Raising Women's Voices, a national initiative that advocates affordable healthcare for everyone. Raising Women's Voices wants to ensure the national discourse on healthcare reform takes the needs of women into account. Other founding members include Mergerwatch and the Avery Institute for Social Change. Raising Women's Voices includes a list of 26 principles including:

  • High quality health care for all.
  • Ensure provision of the full range of reproductive and women's health services. Such services should include, but are not limited to, maternity care, pre- and post-natal care, contraception, abortion, treatment and prevention of sexually transmitted infections, and fertility treatment;
  • Include comprehensive dental care for both children and adults.
  • Actively address and work to eliminate racial, ethnic, gender and class disparities in health care access, as well as disparities due to immigration status, disabilities and sexual or gender identity.[13]

Publications

Fact sheets and position papers

The NWHN publishes independently researched fact sheets and position papers on a variety of women's health topics including breast cancer, endometriosis, cervical cancer, fibroids, menopause and hormonal therapy, mammograms, abortion, and hysterectomy. Every publication is from an objective, feminist perspective without endorsing any specific treatment plan or method.[14]

The Women's Health Activist

The National Women's Health Network publishes a bimonthly newsletter, The Women's Health Activist. The Women's Health Activist has been in circulation since 1976, but was known as the Network News up until 2001. The newsletter includes articles by NWHN board members, staff members, and contributors from diverse organizations and institutions. Recent contributors have included the National Asian Pacific American Women's Forum, Georgetown University, the National Latina Institute for Reproductive Health, PharmedOut, and SisterLove, Inc.

Content consists of independently researched articles on current events, health policy, awareness campaigns, informational topics, and medical updates. Articles in the Women's Health Activist have spoken out against many government actions including the FDA's re-approval of silicone gel breast implants.[15] The newsletter also includes a Young Feminist section, written by current interns or other young professionals in the health activist field.[16]

Staff & Board of Directors
  • Cynthia A. Pearson - Executive Director
  • Evita Almassi - Communications and Digital Marketing Manager
  • Hannah Camp - Development Associate
  • M. Isabelle Chaudry - Senior Policy Manager
  • Sarah Christopherson - Policy Advocacy Director
  • Erin Evans - Office Manager
  • Susan K. Flinn - Newsletter Editor
  • Michelle M. Lockwood - Development Director
  • Kalena Murphy - Senior State Advocacy Manager for Raising Women’s Voices

Board of Directors
  • Kimberly Robinson - Chair
  • Kentina Washington-Leapheart - Action Vice Chair

References
  1. "Health Information".
  2. Ruzek, Sheryl Burt (1978). The Women's Health Movement. New York: Praeger Publishers. pp. 150, 155–156. ISBN 0030562368.
  3. Lipnack, Jessica; Stamps, Jeffrey (1982). Networking: The First Report and Directory. Garden City, New York: Doubleday. pp. 18–21. ISBN 0385177720.
  4. "The First FDA Protest (1975)". National Women's Health Network. Retrieved October 5, 2020.
  5. Morgen, Sandra (2002). Into Our Own Hands: The Women's Health Movement in the United States, 1969-1990. New Brunswick: Rutgers University Press. pp. 26–31. ISBN 0813530717.
  6. Seaman, Barbara (January 4, 2011). The Greatest Experiment Ever Performed on Women: Exploding the Estrogen Myth. New York: Seven Stories Press. p. 149. ISBN 9781583228623.
  7. Prescott, Heather Munro (April 27, 2017). "The Pill Kills: Women's Health and Feminist Activism". Nursing Clio. Retrieved October 5, 2020.
  8. "Archived copy". Archived from the original on 2006-09-26. Retrieved 2006-09-05.CS1 maint: archived copy as title (link)
  9. "Archived copy". Archived from the original on 2009-10-07. Retrieved 2008-09-04.CS1 maint: archived copy as title (link)
  10. "Women's Health Network Petitions FDA to Halt Sales of Estrogen, Testosterone Combination Treatments". Medical News Today. August 28, 2006. Retrieved 2006-09-05.
  11. "Archived copy". Archived from the original on 2009-01-23. Retrieved 2008-09-03.CS1 maint: archived copy as title (link)
  12. "All* Above All".
  13. "Raising Women's Voices for the health care we need - Home". www.raisingwomensvoices.net.
  14. "Archived copy". Archived from the original on 2008-09-15. Retrieved 2008-09-03.CS1 maint: archived copy as title (link)
  15. "Archived copy". Archived from the original on 2009-10-08. Retrieved 2008-09-03.CS1 maint: archived copy as title (link)
  16. "Newsletter Health Articles".
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