World Federation of Hemophilia

The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates hemophiliacs and lobbies for improved medical treatment.[2] 75% of people in the world with bleeding disorders do not know it and do not receive care.[3]

World Federation of Hemophilia
Founded1963
FounderFrank Schnabel
Location
Area served
Worldwide
MethodTreatment, Aid, and Education
Members
127 National Member Organizations[1]
Key people
President Alain Weill[1]
Websitehttp://www.wfh.org/

The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. It has member organizations in 113 countries and official recognition from the World Health Organization. The current President is Alain Weill.[4]

World Hemophilia Day

World Hemophilia Day is held annually on April 17 by the WFH. It is an awareness day for hemophilia and other bleeding disorders, which also serves to raise funds and attract volunteers for the WFH. It was started in 1989; April 17 was chosen in honor of Frank Schnabel's birthday.[5]

Themes by year
  • 2018: "Sharing Knowledge Makes Us Stronger"
  • 2017: "Hear their voices"
  • 2016: "Treatment for All, The Vision of All"
  • 2010: "The Many Faces of Bleeding Disorders – United to Achieve Treatment for All"[6]
  • 2009: "Together, We Care"[7]
  • 2008: "Count Me In"[8]
  • 2007: "Improve Your Life!"[9]

References
  1. "World Federation of Hemophilia". Archived from the original on 2012-06-03. Retrieved 2012-08-16.
  2. "Vision and Mission - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  3. "Fast Facts". National Hemophilia Foundation. 2014-03-04. Retrieved 2020-04-16.
  4. "History - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  5. "WHD 2020". www.worldhemophiliaday.org. Retrieved 2020-04-16.
  6. "World Hemophilia Day 2010". World Federation of Hemophilia. Retrieved 2010-04-17.
  7. "World Hemophilia Day 2009". World Federation of Hemophilia. Archived from the original on 2012-06-18. Retrieved 2010-04-17.
  8. "World Hemophilia Day - 2008". Retrieved 2010-04-17.
  9. "World Hemophilia Day". Retrieved 2010-04-17.
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