Michael Callen

In 1983, Callen co-authored the book How to Have Sex in an Epidemic: One Approach, which outlined the tenets of safe sex, developed in collaboration with Richard Berkowitz and Dr. Joseph Sonnabend. In 1990, he wrote Surviving AIDS, which received an Honorable Mention from the American Medical Writers Association.

Inspired by Sonnabend's theory, Callen joined with fellow person with AIDS Richard Berkowitz and partner Richard Dworkin to write an essay entitled “We Know Who We Are: Two Gay Men Declare War on Promiscuity” for the New York Native. What the men referred to as “promiscuity” was the frequent backroom, unprotected sexual encounters that dominated the gay sexual culture of the time and place. In the post-Stonewall Riots and gay liberation years, the popular belief was that sex was a revolutionary act, and more sex was equivalent to being more liberated.[2]

The essay, in which gay men with AIDS placed the blame on themselves and their community for the spread of the disease, was controversial. Callen and Berkowitz were criticized for their alleged internalized homophobia and potentially detrimental stance on AIDS. Berkowitz and Callen, however, highlighted their authority to speak out against promiscuity as gay men with AIDS.  

Callen went on to become a pioneer advocate for the representation of people with AIDS in AIDS activism leadership. In 1983, the idea of people with AIDS representing themselves in activism brought Michael Callen to an AIDS forum in Denver. The people with AIDS at the forum attended workshops and exchanged stories of their experiences with AIDS through caucuses.

Callen and Bobbi Campbell became delegates for the other men in attendance, and the two of them synthesized the consensus reached over the course of the forum in the Denver Principles. The document was read during the closing session of the conference and was met with an immediate embrace from the audience of gay and lesbian medical professionals.

The Denver Principles consist of four sections: recommendations for health care professionals, recommendations for all people, recommendations for people with AIDS, and rights of people with AIDS. The principles establish the identifier of People With AIDS as opposed to “victim” or “patient,” encourage health care professionals to carefully consider the emotional and psychological effects of AIDS in addition to the medical, highlight the importance of activism and ally-ship from within and outside the community of People With AIDS, and affirms the basic yet fundamental rights including life, love, dignity, and medical confidentiality, of People with AIDS. The Denver Principles draw inspiration from Campbell's nursing background, Callen's work his doctor, and concepts from women's health activism, as well as the testimonies of men at the forum. They ultimately led to the founding of the National Association of People With AIDS (NAPWA).

Callen was the founder of numerous grassroots organizations in various arenas of AIDS activism. He co-founded the New York People With AIDS Health Group, an underground buyer's club that provided access to new drugs and treatments for AIDS and AIDS related illnesses before the FDA approved them, prompting the FDA to ease restrictions and regulations in the drug approval process.[3] He also founded the Community Research Initiative for people with AIDS and their doctors to test new drugs through clinical trials.

Callen was frequently seen on television talking about AIDS. Appearances included Nightline, Good Morning America, 20/20, and The Phil Donahue Show. He wrote for several newspapers and magazines, including the Village Voice, The New York Native, and Outweek; some of his articles are collected in Surviving and Thriving with AIDS, published by the People with AIDS Coalition in 1988. He also appeared in German filmmaker Rosa Von Praunheim's 1990 film Positiv - Die Antwort schwuler Männer in New York auf AIDS.

Despite his career and prominence as an activist, Callen was met with resentment, suspicion and opposition from others. Since he was diagnosed with AIDS in 1982 and survived over a decade, people speculated as to whether his diagnosis was real or fabricated to get attention. He responded to that criticism by releasing his medical reports and pictures of his lungs which showed his pulmonary Kaposi's Sarcoma.[2] Additionally, Callen stood by his belief in the multifactorial theory when there was scientific proof that HIV was the cause of AIDS.

Callen openly questioned the HIV theory of AIDS and was especially critical of AZT monotherapy when it was first introduced: "The HIV paradigm has produced nothing of value for my life and I actually believe that treatments based on the arrogant belief that HIV has proven to be the sole and sufficient cause of AIDS has hastened the deaths of many of my friends."[4]

In June 2019, Callen was one of the inaugural fifty American “pioneers, trailblazers, and heroes” inducted on the National LGBTQ Wall of Honor within the Stonewall National Monument (SNM) in New York City’s Stonewall Inn.[5][6] The SNM is the first U.S. national monument dedicated to LGBTQ rights and history,[7] and the wall’s unveiling was timed to take place during the 50th anniversary of the Stonewall riots.[8]

as part of The Flirtations

• The Flirtations (1990)
• Feeding The Flame: Songs By Men to End AIDS (1992)

Solo

• Purple Heart
• Legacy – a 2-CD album (posthumously)